research

Ageing

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Experiences of ageing in Australia

Overview:

The Experiences of Ageing project aimed to improve our understandings of people’s experiences of getting older, and provide information resources to support older people, their families and health professionals involved in their care. We collected video, audio and written interviews, which have been used to:

  • find out what is important to people as they age
  • contribute to the health information website www.healthdirect.gov.au
  • train health and social care professionals
  • support quality improvement in healthcare
  • write research papers

Healthtalk Australia website module:

Experiences of ageing in Australia

Funding Body:

Healthdirect Australia (2013-2014)

Investigators:

Associate Professor Kath Ryan, Lead Investigator, Research Director, School of Nursing & Midwifery, La Trobe University

Dr Lorraine Smith, Co-Investigator, School of Pharmacy, University of Sydney

Research Team:

Dr Kayli Wild, Research Fellow, School of Nursing & Midwifery, La Trobe University

Dr Victoria Team, Research Officer,  School of Nursing & Midwifery, La Trobe University

Dr Jacqueline Tudball, Research Fellow, School of Nursing & Midwifery, La Trobe University

Advisory Panel:

Sally Beath, GP Representative, Medical Practitioner

Stephanie Bell, Aboriginal Link Co-ordinator, Frontier Aged Care Services

Maree Cameron, Policy Representative,Victorian Government Department of Health

Tony Coles, Executive Officer, Australian Association of Gerontology

Sophie Hill, Head,  Centre for Health Communication and Participation, La Trobe University

Joe Ibrahim, Professor and Consultant Geriatrician, Monash University

Marion Lau, Deputy Chair, Ethnic Communities’ Council of Victoria (Chair of Aged Care Policy Committee)

Janine Lundie, Policy Analyst (Dianne Zalitis)  Healthdirect Australia

Maree McCabe, CEO (Leanne Wenig) Alzheimer’s Australia

Andrew McLachlan, Professor of Pharmacy, University of Sydney and Centre for Education and Research on Ageing

Rhonda Nay, Emeritus Professor, La Trobe University

Helen Rawson, Research Fellow, Southern Health Nursing Research Centre, Deakin University

Libby Saunders, Former National Director, Calvary Health Care

Diane WalkerKnowledge Exchange Co-ord, Lowitja Institute

Ian Yates, CEO, Council on the Ageing

Early Parenthood

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Emotional Experiences of Early Parenthood in Australian Families

Overview:

The Emotional Experiences of Early Parenthood in Australian Families project contributes to understanding how new parents and their partners might best emotionally adjust to pregnancy and early parenthood, and how and by whom they might be best supported. A total of 45 parents (36 women and 9 men) from a wide range of backgrounds and family arrangements were interviewed about their experiences of becoming a parent. People’s stories included their first thoughts about having children, experiences of conception and pregnancy (including surrogacy and IVF), difficult experiences such as miscarriage, premature birth or loss of a baby, labour and birth, feeding and settling, and impact of becoming a parent on people’s relationships and their sense of identity.

Healthtalk Australia website module:

Emotional experiences of early parenthood in Australian families

Funding body:

Healthdirect Australia (2013-2014)

Investigator:

Associate Professor Renata Kokanovic, Lead Investigator, Social Studies in Health and Medicine (SSHM) Research Program, School of Social Sciences, Faculty of Arts, Monash University

Research team:

Kate Johnston-Ataata,  Research Associate, SSHM Research Program, School of Social Sciences, Faculty of Arts, Monash University

Caroline Hart, Research Assistant, SSHM Research Program, School of Social Sciences, Faculty of Arts, Monash University

Nicholas Hill, Research Assistant, SSHM Research Program, School of Social Sciences, Faculty of Arts, Monash University

Advisory Panel:

Andrew Betts, house husband and father

Rita Butera, Executive Director, Women’s Health Victoria

Monica Dux, author and social commentator

Sam Everingham, President, Surrogacy Australia

Belinda Horton, CEO, PANDA

Kate Hunt, Professor, Associate Director / Programme Leader,  Gender and Health, Institute of Health and Wellbeing, University of Glasgow, UK

Renata Kokanovic, Associate Professor, Project Lead Investigator, Monash University

Joyce Jiang, Health Promotion Manager, Multicultural Centre for Women’s Health (since July 2014)

Lindy Marlow, State Wide Facilitator, Refugee Health Nurse Program, Victorian Refugee Health Network and Western Region Health Centre

Lenore Manderson, Professor of Medical Anthropology, Monash University

Ruth McNair, Associate Professor, Academic General Practitioner (Lesbian and Bisexual Women’s Health), University of Melbourne

Suzanne McNaught, Maternal and Child Health Nurse, City of Stonnington, Victoria

Jennifer Peggie, mother and occupational therapist

Leone Piggford, GP (Women’s Health and Paediatrics), University of Melbourne Student Health Service

Meredith Stone, Psychiatric Registrar, South Eastern Sydney Local Health District

Melanie Strang, GP, counsellor, author and creator of Well Mum Well Baby

Elly Taylor, relationship counsellor, parent educator, and creator of Parent Support Online

Clare Shann, Global Mental Health Lead, Movember

Megan Wong, Health Promotion and Research Project Officer, Multicultural Centre for Women’s Health (until July 2014)

Dianne Zalitis, Clinical Governance Analyst, Pregnancy Birth and Baby, Healthdirect Australia

Mental health and Supported Decision Making

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Mental health and Supported Decision Making

Overview:

The Mental health and Supported Decision Making website is a key outcome of the ARC Linkage Project Options for Supported Decision Making to Enhance the Recovery of People with Severe Mental Health Problems (the Supported Decision Making project), along with the companion website Mental health: Carers’ experiences.

Innovative and interdisciplinary, the Supported Decision Making project aims to build a comprehensive understanding of the lived experience of psychiatric diagnoses, including bipolar disorder, psychosis, schizophrenia and depression. The research investigated experiences of people with these diagnoses, family carers, psychiatrists, and other mental health/allied health practitioners. Narrative interviews were conducted with people from these four groups, and had a particular focus on exploring experiences of access by people with lived experience of psychiatric diagnoses to support in relation to making decisions about care and treatment. The Supported Decision Making project addresses therapeutic management, the broader social and cultural significance of diagnosis, and the implications for mental health services of the 2014 Victorian Mental Health Act and its emphasis on supported decision making and a recovery framework.

Research findings informed the design of two unique online resources – one exploring the experiences of people with lived experience of psychiatric diagnoses, and the second detailing carers’ experiences. Other resources will also be developed that will assist people diagnosed with bipolar disorder, psychosis, schizophrenia and depression in making informed decisions about their healthcare and other important life decisions.

(For further background on the research, please visit the Supported Decision Making project website.)

Healthtalk Australia website module:

Mental health and Supported Decision Making

Funding Body:

Australian Research Council Linkage Project (LP130100557) in partnership with the Victorian Department of Health and Human Services, Mind Australia, Neami National, Well Ways (formerly Mental Illness Fellowship Victoria), Tandem, and the Victorian Mental Illness Awareness Council.

Investigators:

Associate Professor Renata Kokanovic, Lead Investigator, Monash University

Professor Bernadette McSherry, Co Investigator, University of Melbourne

Professor Helen Herrman, Co Investigator, University of Melbourne

Dr Lisa Brophy, Co Investigator, University of Melbourne

Partner Investigators:

Rosemary Callendar, formerly of Tandem

Keren Wolstencroft, Neami National

Elizabeth Crowther, Well Ways (formerly Mental Illness Fellowship Victoria)

Margaret Grigg, Mind Australia, currently seconded to the Victorian Department of Health and Human Services

Robyn Humphries, Victorian Department of Health and Human Services

Wayne Weavell, formerly of Victorian Mental Illness Awareness Council

Research Team:

Monash University

Dr Fauzia Knight, Consultant Research Associate

Nicholas Hill, Project Research Assistant and Lived Experience Study Project Coordinator, Social Studies in Health and Medicine (SSHM), School of Social Sciences, Monash University

Dr Audrey Statham, Research Associate and Carers’ Experiences Study Project Coordinator, SSHM Research Program, School of Social Sciences, Faculty of Arts, Monash University

Kate Johnston-Ataata, Project Advisor, SSHM Research Program, School of Social Sciences, Monash University

Melinda Soós, Project Research Assistant, SSHM Research Program, School of Social Sciences, Monash University

Caroline Hart, Project Research Assistant, SSHM Research Program, School of Social Sciences, Monash University

University of Melbourne

Dr Kristen Moeller-Saxone, Research Associate, Orygen (The National Centre of Excellence in Youth Mental Health), University of Melbourne

Andrew Butler, Project Assistant, Melbourne Law School, University of Melbourne

Advisory Panel:

Australia-based members

Professor Alex Broom, Professor of Sociology, School of Social Sciences, University of New South Wales

Denise Damouni, Representative, Eastern Health Carer Advisory Bank

Indigo Daya, Senior Policy Officer, Consumer Portfolio, Consumer, Carer and National Relations, Victorian Department of Health and Human Services

Liz Dearn, Policy and Research Advocate, Office for the Public Advocate

Dr Simon Jones, Consultant Psychiatrist, Royal Melbourne Hospital

Dr Kon Kon, Senior Policy Analyst, Community Mental Health Reform / Mental Health Branch, Mental Health, Wellbeing and Ageing Division, Victorian Department of Health and Human Services

Ben Kong, Senior Policy and Project Advisor, System Transformation, Mental Health Branch, Mental Health, Wellbeing and Ageing Division, Victorian Department of Health and Human Services

Ms Helen Lococo, Carer Consultant, Mercy Mental Health

Associate Professor Catherine Mills, Associate Professor of Bioethics, Future Fellow, Centre for Bioethics, Monash University

Bee Mitchell-Dawson, Deputy Commissioner, Mental Health Complaints Commisioner

Emma Montgomery, Senior Legal Member, Victorian Mental Health Tribunal

Dave Peters, Consumer Representative, Neami National

Dr Kate Richards, Writer (author of Madness: a Memoir), MD, clinical research

Fiona Rippin, Senior Policy Officer, System Transformation, Mental Health Branch, Wellbeing and Ageing Division, Victorian Department of Health and Human Services

Cath Roper, Consumer Advocate, Centre for Psychiatric Nursing & Lecturer, School of Health Sciences, University of Melbourne

Keir Saltmarsh, Senior Education and Engagement Officer, Office of the Mental Health Complaints Commissioner

Julie Skilbeck, Team Leader and Principal Policy Analyst, Mental Health Reform Strategy Team, Victorian Department of Health and Human Services

Associate Professor Ruth Vine, Executive Director NorthWestern Mental Health, MD

International members

Professor Lisa Blackman, Professor in Media and Communications, Department of Media and Communications, Goldsmiths College, University of London, UK

Professor Lars-Christer Hydén, Professor of Social Psychology and Director of Center for Dementia Research (CEDER), Linköping University, Sweden

Professor David Pilgrim, Professor of Health and Social Policy, Department of Sociology, Social Policy and Criminology, University of Liverpool, UK

Professor Damien Ridge, Professor of Health Studies, School of Life Sciences, University of Westminster, UK

Mental Health: Carers’ Experiences

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Mental health: Carers’ experiences

Overview:

The Mental health: Carers’ experiences website is a key outcome of the ARC Linkage Project Options for Supported Decision Making to Enhance the Recovery of People with Severe Mental Health Problems (the Supported Decision Making project), along with the companion website Mental health and Supported Decision Making.

Innovative and interdisciplinary, the Supported Decision Making project aims to build a comprehensive understanding of the lived experience of psychiatric diagnoses, including bipolar disorder, psychosis, schizophrenia and depression. The research investigated experiences of people with these diagnoses, family carers, psychiatrists, and other mental health/allied health practitioners. Narrative interviews were conducted with people from these four groups, and had a particular focus on exploring experiences of access by people with lived experience of psychiatric diagnoses to support in relation to making decisions about care and treatment. The Supported Decision Making project addresses therapeutic management, the broader social and cultural significance of diagnosis, and the implications for mental health services of the 2014 Victorian Mental Health Act and its emphasis on supported decision making and a recovery framework.

Research findings informed the design of two unique online resources – one exploring carers’ experiences, and the second detailing the experiences of people with lived experience of psychiatric diagnoses. Other resources will also be developed that will assist people diagnosed with bipolar disorder, psychosis, schizophrenia and depression in making informed decisions about their healthcare and other important life decisions.

(For further background on the research, please visit the Supported Decision Making project website.)

Healthtalk Australia website module:

Mental health: Carers’ experiences

Funding Body:

Australian Research Council (Linkage Project LP130100557) in partnership with the Victorian Department of Health and Human Services, Mind Australia, Neami National, Well Ways (formerly Mental Illness Fellowship Victoria), Tandem, and the Victorian Mental Illness Awareness Council.

Investigators:

Associate Professor Renata Kokanovic, Lead Investigator, Monash University

Professor Bernadette McSherry, Co Investigator, University of Melbourne

Professor Helen Herrman, Co Investigator, University of Melbourne

Dr Lisa Brophy, Co Investigator, University of Melbourne

Partner Investigators:

Rosemary Callendar, formerly of Tandem

Keren Wolstencroft, Neami National

Elizabeth Crowther, Well Ways (formerly Mental Illness Fellowship Victoria)

Margaret Grigg, Mind Australia, currently seconded to the Victorian Department of Health and Human Services

Robyn Humphries, Victorian Department of Health and Human Services

Wayne Weavell, formerly of Victorian Mental Illness Awareness Council

Research Team:

Monash University

Dr Audrey Statham, Project Research Associate and Carers’ Experiences Study Coordinator, Social Studies in Health and Medicine (SSHM) Research Program, School of Social Sciences, Faculty of Arts, Monash University

Dr Fauzia Knight, Consultant Research Associate

Nicholas Hill, Project Research Assistant and Lived Experience Study Coordinator, SSHM Research Program, School of Social Sciences, Monash University

Kate Johnston-Ataata, Project Advisor, SSHM Research Program, School of Social Sciences, Monash University

Melinda Soós, Project Research Assistant, SSHM Research Program, School of Social Sciences, Monash University

Yanying Lu, Project Research Assistant, SSHM Research Program, School of Social Sciences, Monash University

University of Melbourne

Dr Kristen Moeller-Saxone, Research Associate, Orygen (The National Centre of Excellence in Youth Mental Health), University of Melbourne

Andrew Butler, Project Assistant, Melbourne Law School, University of Melbourne

Advisory Panel:

Australia-based members

Professor Alex Broom, Professor of Sociology, School of Social Sciences, University of New South Wales

Denise Damouni, Representative, Eastern Health Carer Advisory Bank

Indigo Daya, Senior Policy Officer, Consumer Portfolio, Consumer, Carer and National Relations, Victorian Department of Health and Human Services

Liz Dearn, Policy and Research Advocate, Office for the Public Advocate

Dr Simon Jones, Consultant Psychiatrist, Royal Melbourne Hospital

Dr Kon Kon, Senior Policy Analyst, Community Mental Health Reform / Mental Health Branch, Mental Health, Wellbeing and Ageing Division, Victorian Department of Health and Human Services

Ben Kong, Senior Policy and Project Advisor, System Transformation, Mental Health Branch, Mental Health, Wellbeing and Ageing Division, Victorian Department of Health and Human Services

Ms Helen Lococo, Carer Consultant, Mercy Mental Health

Associate Professor Catherine Mills, Associate Professor of Bioethics, Future Fellow, Centre for Bioethics, Monash University

Bee Mitchell-Dawson, Deputy Commissioner, Mental Health Complaints Commisioner

Emma Montgomery, Senior Legal Member, Victorian Mental Health Tribunal

Dave Peters, Consumer Representative, Neami National

Dr Kate Richards, Writer (author of Madness: a Memoir), MD, clinical research

Fiona Rippin, Senior Policy Officer, System Transformation, Mental Health Branch, Wellbeing and Ageing Division, Victorian Department of Health and Human Services

Cath Roper, Consumer Advocate, Centre for Psychiatric Nursing & Lecturer, School of Health Sciences, University of Melbourne

Keir Saltmarsh, Senior Education and Engagement Officer, Office of the Mental Health Complaints Commissioner

Julie Skilbeck, Team Leader and Principal Policy Analyst, Mental Health Reform Strategy Team, Victorian Department of Health and Human Services

Associate Professor Ruth Vine, Executive Director NorthWestern Mental Health, MD

International members

Professor Lisa Blackman, Professor in Media and Communications, Department of Media and Communications, Goldsmiths College, University of London, UK

Professor Lars-Christer Hydén, Professor of Social Psychology and Director of Center for Dementia Research (CEDER), Linköping University, Sweden

Professor David Pilgrim, Professor of Health and Social Policy, Department of Sociology, Social Policy and Criminology, University of Liverpool, UK

Professor Damien Ridge, Professor of Health Studies, School of Life Sciences, University of Westminster, UK

Multiple Medicines

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Living with multiple medicines: an in-depth examination of experiences and management of multiple medicines

Overview:

The Living with Multiple Medicines project is an in-depth examination of people’s experiences and management of multiple medicines. This project aimed to improve our understanding of people’s experiences of medicines and their health and illness, and provide resources to support people living with a wide variety of health conditions, their families, friends and the health professionals involved in their care. Our researcher travelled around Australia to talk to 40 people (including 5 doctors and 1 pharmacist) in their own homes or workplaces about issues such as:

  • how they feel about taking multiple medicines;
  • communicating with others; and
  • problems they had with their medicines and how these were resolved.

As with all Healthtalkonline projects, participants were men and women from varied backgrounds in terms of age, cultural and socio-economic background, geographic location and sexuality. Their stories were video or audio-recorded then analysed to capture both overall findings from all interviews, as well as individual stories, illustrated by video, audio and written excerpts.

Through the Living with Multiple Medicines project, participants’ information is used in several ways:

  • to develop support and information resources for people using multiple medicines;
  • for research: to find out what is important to people using multiple medicines;
  • to train health and social care professionals; and
  • to enable visitors to the Living with Multiple Medicines website (below) to see and hear participants share their personal stories on film.

Healthtalk Australia website module (located on the NPS MedicineWise website):

Living with Multiple Medicines

Funding Body:

NPS MedicineWise

Investigators:

Dr Jacqueline Tudball, Lead Investigator

Dr Lorraine Smith, Co-Investigator

Ms Margaret Williamson, Team Leader,  NPS MedicinesWise

Advisory Panel:

Alice Bhasale, formerly at NPS MedicinesWise

Ric Day, Professor, University of New South Wales

Sue Healey, consumer representative

Elizabeth Manias, Professor, University of Melbourne

Kath Ryan, Associate Professor,  La Trobe University

Sarah Spagnardi, NPS MedicinesWise

Margaret Williamson, NPS MedicinesWise

Depression and Recovery

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Experiences of depression and recovery in Australia

Overview:

The Experiences of Depression and Recovery project established a unique partnership between Monash, Oxford and Melbourne Universities and beyondblue. The researchers conducted in-depth narrative interviews with 39 people from around Australia on their experiences of depression and recovery. Participants were men and women from varied backgrounds in terms of age, cultural and socio-economic background, and sexuality. Stories were video or audio-recorded then carefully analysed to create a public website designed to support people experiencing depression and those involved in their care. The website captures both overall findings from all interviews, as well as individual stories, illustrated by video, audio and written excerpts and  is currently available on our UK Partner site (see below).

Healthtalk Australia website module (located on our UK partner site, healthtalk.org):

Experiences of Depression and Recovery in Australia

Funding Body:

Australian Research Council Linkage Project (LP0990229) in partnership with beyondblue

Investigators:

Associate Professor Renata Kokanovic, Lead Investigator, Monash University

Professor Sue Ziebland, Co Investigator, University of Oxford

Professor Jane Gunn, Co Investigator, University of Melbourne

Partner Investigator:

Dr Nicole Highet, beyondblue

Research Team:

Associate Professor Renata Kokanovic, Lead Investigator, Social Studies in Health and Medicine (SSHM) Research Program, School of Social Sciences, Faculty of Arts, Monash University

Kate Johnston-Ataata, Research Associate, SSHM Research Program, School of Social Sciences, Faculty of Arts,Monash University

Nicholas Hill, Research Assistant, SSHM Research Program, School of Social Sciences, Faculty of Arts, Monash University

Advisory Panel:

Sue Ziebland, Professor, Research Director, Health Experiences Research Group,  Oxford University

Lorraine Smith, Associate Professor, Faculty of Pharmacy, University of Sydney

John Furler, Senior Research Fellow, Department of General Practice,  University of Melbourne; General Practitioner

Caroline  Johnson,  General Practitioner

Jane Gunn, Professor, Head, Department of General Practice, University of  Melbourne; General Practitioner

Nicole Highet, Deputy CEO and Perinatal / Community Awareness Advisor, beyondblue

Huong Tran, Vietnamese Interpreter, North Richmond Community Health Centre

Halina Bluzer, Academic Services Co-ordinator, Royal Melbourne  Institute of Technology, School of Engineering (TAFE)

Paul Walshe, blueVoices representative

Addiction, Treatment and Recovery

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Experiences of addiction, treatment and recovery

Overview:

This project is the first of its kind in Australia and around the world. It will collect and analyse the personal accounts of people who describe themselves as having a drug habit, dependence, or addiction, and present these (anonymised) accounts in textual, audio and re-enacted video form on a publicly accessible web site. The aim of the study is to generate much-needed new insights into the range of experiences that make up life for people who consider themselves to have a drug habit, dependence or addiction.

How do people manage this aspect of their lives? How do they cope with the stigma associated with it? What kind of help do they seek, where necessary? What do ideas of well-being or recovery mean to them? What resources are important to them? The resulting web site will be available for training, information and public awareness purposes.

Funding body:

Australian Research Council Discovery Project (DP140100996, 2014 – 2016)

Investigators:

Professor Suzanne Fraser, NDRI, Curtin University

Associate Professor Renata Kokanovic, Monash University

Professor David Moore, NDRI, Curtin University

Professor Carla Treloar, University of NSW

Associate Professor and Dr Adrian Dunlop, Hunter New England Area Health Service

Research team:

Dr Kiran Pienaar, Research Associate, NDRI, Curtin University

Ms Ella Dilkes-Frayne, Research Assistant, Monash University

Advisory Panel:

Ms Colleen Blums, Drug and Alcohol Nurses Australasia

Ms Anna Keato, Victorian Department of Health and Human Services

Mr Danny Jeffcote, North Yarra Community Health

Ms Debbie Kaplan, NSW Health

Ms Jenny Kelsall, Harm Reduction Victoria

Ms Edita Kennedy, Association of Participating Service Users

Associate Professor Lynne Magor-Blatch, Australasian Therapeutic Communities Association

Mr Brad Pearce, Victorian Alcohol and Drug Association

Ms Julie Rae, Australian Drug Foundation

Professor Ann Roche, National Centre for Education and Training on Addiction

Mr Robert Stirling, Network of Alcohol and other Drugs

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